Welcome to THE MAKENNA PROJECT

 

Makenna is 7 years old and has 3 lobes of the right side of her brain removed. She is a living miracle. God is doing awesome things in her life and we continue to believe that those awesome things, miracles included, will continue!!!

BACKGROUND STORY

Makenna Eden was born September of 2004. She had many developmental delays that were unexplained until uncontrollable seizures led her to be diagnosed with Cerebral Folate Deficiency in the summer of 2006. CFD is a disorder in which folic acid is not absorbed into the spinal fluid and brain. Folic acid is necessary for a brain to function normally. She also had areas of her brain called Cortical Dysplasia that are areas that never fully/correctly developed. Both disorders cause seizures and developmental delay.

Because of her intractable epilepsy (epilepsy that cannot be controlled by medication), she has had 4 brain surgeries all in 2007 (2 in March, 1 in April, and 1 in August) to attempt to stop the uncontrollable seizures (she was having hundreds and hundreds a day). To make an extremely long story short, she has had the parietal, occipital, and temporal lobes of the right side of her brain removed. After each surgery she thrilled everyone with her speedy recoveries. She seemed to developmentally improve the MORE brain that was removed!!

She does not walk, talk, feed herself, etc....YET. She will though. She will.

We believe that God is in control and has HIS hand on her life. She is a miracle and we expect great things in the future.

Read more at http://www.caringbridge.org/visit/makennajohnson/mystory